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Coronavirus crisis poses challenges for those with autism, intellectual disabilities; tips and resources

Patriot-News - 4/26/2020

The coronavirus pandemic has altered everyday experiences in big and small ways.

For those with autism or other intellectual disabilities, the changes to their routines can be especially profound and disorienting, Health Secretary Dr. Rachel Levine said in her news briefing Saturday.

“Change to our daily way of life has been very difficult for Pennsylvanians," Levine said. And that is especially true for those with autism or other disabilities, Levine said.

“People with intellectual or developmental disabilities or autism experience the world somewhat differently and they may not understand why their routine has been disrupted,” Levine said.

Pennsylvania schools are closed for the rest of the year, so students are learning remotely. Kids aren’t seeing each other in classrooms or extracurricular activities such as sports and theater. And some therapies and support services aren’t taking place as they did before the pandemic, which can be another source of disappointment for young people with disabilities.

Levine, who previously worked as a pediatrician earlier in her career, offered some guidance to family members.

Parents should do what they can to promote a sense of calm. Taking a walk or going online to offer a virtual tour of a museum can be soothing, Levine said. Some zoos, which are closed during the pandemic, are offering engaging features online.

She also suggested keeping individuals with autism or other intellectual disabilities connected with family members as much as possible, via phone or video chats. Seeing family members and friends can offer reassurance.

Levine also encouraged family members to reach out for assistance if they need it. She suggested calling providers of some social services and therapies if possible to get more help.

The state Department of Human Services has launched a hotline offering help for individuals struggling with anxiety and can direct callers to various support services. The toll-free support line is staffed around the clock and can be reached at 1-855-284-2494. For TTY, dial 724-631-5600.

In addition, the 2-1-1 hotline, which is operated by the United Way, can connect families to local resources.

The Autism Society offers a great deal of information to aid families in dealing with the changes in life due to COVID-19. The society’s website offers a host of tools to deal with modifying routines, applying for aid and mental health tips and resources.

The Arc of Pennsylvania has also offered a host of resources for families seeking services. The Arc is also offering weekly online forums on Wednesday nights for family members to share concerns and get information on coping with the pandemic.

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